Laurie Gelb's husband, Larry Taylor, to whom this site is dedicated, was born with Marfan Syndrome, a genetic disorder of connective tissue. Larry required two aortic valve replacements (the second of which led to a serious stroke) and numerous eye surgeries. Pre-ALS, he lost the vision in one eye and nearly half his lung capacity, with constant pain from other complications.
Larry later acquired Type 2 diabetes, and still later died of the flail arm variant of ALS. Whatever your health concerns, he would tell you to keep it moving till you can't. At various times a(n) sf/f author, gardener, surfer, traveling circus assistant, musician, artist, comic/sf/toy/sports card convention organizer, fisherman, zookeeper, and so much more, Larry was a force of nature.
Laurie holds a BA in Philosophy,/Business from the University of Houston and a Master's degree in Public Health from the University of Texas. In a career that began in a busy hospital lobby at minimum wage, she has since worked in pharmaceuticals, biotech, medical device, clinical, and managed care settings. She has helped bring drugs and devices to market, ensure that they are used effectively, and address patient and caregiver needs apart from products. Her roles have included marketing and education at a manufacturer of postural supports for wheelchair users.
She has published outcomes research in clinical journals, other content for physicians, and presented at e-health and disease management conferences for many years.
Laurie has volunteered with the Marfan Foundation and other health-related organizations. Presently, she co-moderates the ALS Forums and has supported people with other CNS disorders and mobility issues. An early Web developer, she has been active in patient/caregiver forums and groups since the 80s, and was an early e-health/patient outcomes pundit.
As a volunteer mentor, Laurie supports students, social entrepreneurs and not-for-profit organizations worldwide, working in areas such as housing, utilities, education, agriculture, and of course, health care. She is also a paid consultant, working in survey/outcomes research, strategy, and content, and occasionally as an expert witness in intellectual property cases.
More information is available on LinkedIn, ResearchGate, and Google Scholar.
Larry later acquired Type 2 diabetes, and still later died of the flail arm variant of ALS. Whatever your health concerns, he would tell you to keep it moving till you can't. At various times a(n) sf/f author, gardener, surfer, traveling circus assistant, musician, artist, comic/sf/toy/sports card convention organizer, fisherman, zookeeper, and so much more, Larry was a force of nature.
Laurie holds a BA in Philosophy,/Business from the University of Houston and a Master's degree in Public Health from the University of Texas. In a career that began in a busy hospital lobby at minimum wage, she has since worked in pharmaceuticals, biotech, medical device, clinical, and managed care settings. She has helped bring drugs and devices to market, ensure that they are used effectively, and address patient and caregiver needs apart from products. Her roles have included marketing and education at a manufacturer of postural supports for wheelchair users.
She has published outcomes research in clinical journals, other content for physicians, and presented at e-health and disease management conferences for many years.
Laurie has volunteered with the Marfan Foundation and other health-related organizations. Presently, she co-moderates the ALS Forums and has supported people with other CNS disorders and mobility issues. An early Web developer, she has been active in patient/caregiver forums and groups since the 80s, and was an early e-health/patient outcomes pundit.
As a volunteer mentor, Laurie supports students, social entrepreneurs and not-for-profit organizations worldwide, working in areas such as housing, utilities, education, agriculture, and of course, health care. She is also a paid consultant, working in survey/outcomes research, strategy, and content, and occasionally as an expert witness in intellectual property cases.
More information is available on LinkedIn, ResearchGate, and Google Scholar.